Welcome to the

Akcea ConnectTM Patient Support Program!

 

While hereditary transthyretin amyloidosis (hATTR) is a rare disease, you are not alone. Our program is meant for anyone with hATTR that is taking TEGSEDITM and is enrolled in the Akcea ConnectTM Patient Support Program.

The Akcea ConnectTM Patient Support Program is offered by Akcea Therapeutics Canada to assist and support patients on TEGSEDITM. Akcea ConnectTM is proud to offer support services, like injection training and administration support, and resources about hATTR and TEGSEDITM to help support you throughout your treatment journey. As part of this ongoing commitment, a Nurse Case Manager is available in Canada to provide ongoing support.

Programs offered may include

Peer Mentor Program

You can text, call or email a Peer Mentor, someone who can share lifestyle tips in addition to personal experiences related to hATTR and their treatment journey.

Education

Comprehensive education, resources and navigation support services specific to hATTR and TEGSEDITM.

Injection training & administration support

Injection training and administration support services in your home or through a specialty clinic network. Before using TEGSEDITM, your healthcare provider should show you or your caregiver how to use it the right way. If you or your caregiver have any questions, ask your healthcare provider.

Blood draw & urine testing services

Offered in your home or through a specialty clinic network. Results communicated directly to your healthcare provider.

Pharmacy services

Coordination of the dispense and delivery of TEGSEDITM through a dedicated pharmacy network or your preferred pharmacy.

Patient support calls

You will receive a call within 24 hours of enrolment and can request regular support calls throughout treatment. Bilingual support is also available Monday–Friday 8 AM–8 PM EST, excluding holidays, with translation services in over 200 languages.

Reimbursement navigation

Assessment of your coverage options and facilitation of payer coverage requirements.

Financial assistance

Investigation of reimbursement options and eligibility for financial assistance for you.

Contact information

 

Bilingual support is available Monday–Friday 8AM–8PM EST, excluding holidays.
Translation services in over 200 languages are available upon request.

 

Resources

Our goal is to help you feel empowered about your healthcare through education. We are here to help connect you to resources that can provide you with additional support for your TEGSEDITM treatment.

For additional information about hATTR, Akcea Connect™ services, and treatment with TEGSEDI™, download this booklet.

For more information on things to consider while traveling, download this checklist.

To help you keep track of your TEGSEDITM doses and appointments with your healthcare team, download this booklet.