Welcome to the
Akcea Connect Patient Support Program!
While hereditary transthyretin amyloidosis (hATTR) is a rare disease, you are not alone. Our program is meant for anyone with hATTR that is taking PrTEGSEDI® and is enrolled in the Akcea Connect Patient Support Program.
The Akcea Connect Patient Support Program is offered by Sobi Canada to assist and support patients on TEGSEDI. Akcea Connect is proud to offer support services, like injection training and administration support, and resources about hATTR and TEGSEDI to help support you throughout your treatment journey. As part of this ongoing commitment, a Nurse Case Manager is available in Canada to provide ongoing support.
Programs offered may include
Peer Mentor Program
You can text, call or email a Peer Mentor, someone who can share lifestyle tips in addition to personal experiences related to hATTR and their treatment journey.
Education
Comprehensive education, resources and navigation support services specific to hATTR and TEGSEDI.
Injection training & administration support
Injection training and administration support services in your home or through a specialty clinic network. Before using TEGSEDI, your healthcare provider should show you or your caregiver how to use it the right way. If you or your caregiver have any questions, ask your healthcare provider.
Blood draw & urine testing services
Offered in your home or through a specialty clinic network. Results communicated directly to your healthcare provider.
Pharmacy services
Coordination of the dispense and delivery of TEGSEDI through a dedicated pharmacy network or your preferred pharmacy.
Patient support calls
You will receive a call within 24 hours of enrolment and can request regular support calls throughout treatment. Bilingual support is also available Monday–Friday 8 AM–8 PM EST, excluding holidays, with translation services in over 200 languages.
Reimbursement navigation
Assessment of your coverage options and facilitation of payer coverage requirements.
Financial assistance
Investigation of reimbursement options and eligibility for financial assistance for you.
Contact information
1-833-327-0723
Bilingual support is available Monday–Friday 8AM–8PM EST, excluding holidays.
Translation services in over 200 languages are available upon request.
Resources
Our goal is to help you feel empowered about your healthcare through education. We are here to help connect you to resources that can provide you with additional support for your TEGSEDI treatment.
For additional information about hATTR, Akcea Connect services, and treatment with TEGSEDI, download this booklet.
For more information on things to consider while traveling, download this checklist.
To help you keep track of your TEGSEDI doses and appointments with your healthcare team, download this booklet.